Ukuba ne-JIA kunokonyusa umngcipheko womntwana wakho wokudakumba kunye nexhala.Nantsi indlela yokubanceda bahlangabezane nazo.
Ukukhula kunokuba nzima ngokwaneleyo, kodwa xa ukongeza kwiimeko ezifana ne-juvenile idiopathic arthritis (JIA), inokwenza umntwana kunye nokufikisa kube nzima ngakumbi.Iintlungu ezidibeneyo zinokuphazamisana nobomi bemihla ngemihla bomntwana wakho, zibangele kungekuphela nje ubunzima bomzimba kodwa neengxaki zeemvakalelo ezifana nokudakumba okanye ukuxhalaba.Siye sathetha neengcali ngeendlela ezahlukeneyo i-JIA eyichaphazela ngayo impilo yengqondo yomntwana kunye nendlela onokumnceda ngayo umntwana wakho amelane nokukhula.
Iziphazamiso zengqondo ezifana nokudakumba kunye nokuxhalaba zixhaphake kakhulu kubantwana abane-JIA, utsho uDiane Brown, MD, i-rheumatologist yabantwana kwiSibhedlele Sabantwana saseLos Angeles.“Phambi kwe-COVID, olona qikelelo lungcono yayikukuba i-10 ukuya kuma-25 ekhulwini labantwana abanesifo samathambo banokuba neempawu eziqatha zokudakumba okanye ukuxhalaba,” utshilo.“Ndicinga ukuba mde ngoku.”Yingakho kubaluleke kakhulu ukwazi iimpawu zokudakumba kunye nokuxhalaba kunye nendlela engcono yokuxhasa impilo-ntle yemvakalelo yomntwana wakho.
UGqr Will Fry, isazi ngengqondo yomntwana kwiSibhedlele saBantwana saseJohns Hopkins Ikliniki yeentlungu ezingapheliyo eSt. Petersburg, eFlorida, wathi iJIA ichaphazela impilo yengqondo ngeendlela ezininzi.“Eyona nto iphambili mhlawumbi ziintlungu ezayanyaniswa neJIA,” utshilo."Impembelelo yomzimba kumalungu inokukhokelela ekubeni abantwana benze kancinci kwaye bakhathazeke ngenxa yokungakwazi ukwenza izinto."abantu abaneentlungu ezingapheliyo."Intlungu yayiyeyona nto inamandla yokudakumba kubantwana abane-arthritis," kusho uGqr Brown.
Ukungaqiniseki okunxulumene nokuhlala nesifo esinganyangekiyo kunokuba ngumthwalo onzima kubantwana nakwishumi elivisayo."Ukungaqiniseki malunga nokuba zeziphi iimpawu abaya kuba nazo kunye nokuba ubomi babo buya kuba njani kunokushiya abantwana bedangele okanye bengenathemba," utshilo uFry.Ikhosi ye-JIA ngokwayo inokungacingeleki kakhulu, ikhokelela kwezi mvakalelo.“Izigulana zineentsuku ezintle kunye neentsuku ezimbi kwaye aziqinisekanga ukuba ziya kujongeka zilungile na kuvavanyo olubalulekileyo okanye uhambo oluya eDisneyland kuba isifo samathambo sinokuqhambuka – yinxalenye yexhala.izinto ezibalulekileyo,” wongezelela uGqr. Brown.
Ukugula okungapheliyo kunokwenza nabani na azive eyedwa, uFry uthi, kodwa kunokuba ngumngeni ngakumbi kubantwana nakwishumi elivisayo kwinqanaba lobomi babo xa ngokwemvelo bafuna ukuhlalisana kunye nokuhambelana noontanga babo.Ingxaki yeJIA inokongeza isithuko kukwenzakala.UGqr. Brown uthi: “Enoba kukukhempisha nentsapho okanye ukudlala ibhola ekhatywayo nabahlobo, ukungakwazi ukwenza umthambo kusenokudimaza."Ukuthatha amayeza xa ukwishumi elivisayo xa ufuna ukufana nabanye abantu kunokuba ngomnye umzabalazo.".
Ukudibanisa lo mzabalazo wentlalo yinyaniso ebuhlungu yokuba abantu abaninzi abaqondi ukuba kunjani ukuhlala ne-JIA.“Kuba nzima ngakumbi xa imeko yakho isoloko ingabonakali kwabanye abantu kwaye ayipheli – xa izihlobo zakho zingenabadlali abaza kuzityikitya kwaye ayiphucuki njengentlungu enyangwayo.Fumana uvelwano nenkxaso.nto leyo ekunzima ukuba iqondwe ngoontanga bakho nosapho lwakho,” watsho uGqr.Ngokomzekelo, utitshala usenokungayiqondi imida yomfundi kwiklasi ye-PE, okanye unokuba nobunzima bokugqiba uvavanyo xa umnwe ubuhlungu ngenxa ye-arthritis.
Xa zonke ezi zinto zithathelwa ingqalelo, akumangalisi ukuba abantwana abane-JIA banokufumana iingxaki zeemvakalelo ezifana nokudakumba okanye ukuxhalaba.Kodwa wazi njani ukuba umntwana wakho ujongene nobunzima obukhethekileyo kwaye ufuna inkxaso eyongezelelweyo?UFry uthi: “Jonga ukucaphuka, uvakalelo lokuchaswa, abantwana abasazami ukuchitha ixesha nabahlobo okanye benze izinto ababekade befuna ukuzenza.Iimvakalelo zokungabi nathemba, usizi oluzingisileyo, kwaye ngokuqinisekileyo naziphi na iingcinga okanye ukuthetha ngeempawu zokuzenzakalisa umntwana wakho afuna inkxaso ekhawulezileyo.
Ukudakumba kunye nokuxhalaba kunokuzibonakalisa njengeempawu zomzimba ezingabonakali lula kubantwana nakwishumi elivisayo."Ukwanda kwezikhalazo zeempawu ezingacacanga kunye nezixubeneyo, ezinjengeentloko, isicathulo, intlungu yesifuba, ukunyanzeliswa, njl., Kunokuba ngumqondiso ukuba ezinye izifo okanye ukulimala zikhutshwe," kusho uDkt Brown.Ukongezelela, naluphi na utshintsho olukhulu kwindlela yokulala okanye yokutya, ngakumbi ukuzuza ubunzima okanye ukulahleka, kunokubonisa ukuxinezeleka okanye ukuxhalaba kwaye kufuneka ubonise isidingo somntwana wakho wenkxaso, uthi.
Njengomzali okanye umntu onyamekela umntwana, kusenokukukhathaza ukubona umntwana wakho etsala nzima yaye ungazi ukuba umele uqale ngaphi ukuze umnike uncedo alufunayo.“Enye yezona ndawo zintle onokuthi uqalise kuyo kukwikhaya lakho nakubudlelwane bakho nabantwana bakho,” utshilo uFry.“Yonke into iqala ngokukwazi ukuthetha nabantwana bakho, uqinisekise iimvakalelo zabo kwaye ube kunye nabo kuyo yonke into abatyhubela kuyo,” utshilo.Iingxoxo ezivulekileyo kunye nokunyaniseka (nangona zifanelekile ubudala) malunga nemeko yabo kunye nonyango zinokunceda umntwana wakho azive exhaswa, ngokutsho kweArthritis Foundation.
Ukuxhasa impilo yengqondo yomntwana wakho kukwathetha ukubakhuthaza ukuba bathathe inxaxheba kwizinto azonwabisa ngazo kunye nentlalontle.Kusenokufuneka wenze ubuchule ukuze ubancede bafumane iindlela zokutshintsha imisebenzi ukuze baqhubeke nokuthatha inxaxheba ngaphandle kweempawu zeJIA, utshilo uFry.Oku kubaluleke kakhulu kuba kunceda ukwakha “ukuzimela” ebantwaneni, okanye ukuzithemba kwabo ukuba bangaphumelela kwinto enokunceda ukulwa nokudakumba, itsho iArthritis Foundation.“Abantwana bakwimo entle xa besenza into,” utshilo uFry."Thatha into oyithandayo okanye ufumane indlela abantwana abanokuzingca ngayo enokunceda ukumisa ibhola yekhephu."
Igama elithi unyango lisenokubekwa ibala, kodwa abantwana abaninzi abane-JIA banokuzuza kwinkxaso eyongezelelweyo evela kwingcali yempilo yengqondo efana nesayikholojisti.Ngexesha lonyango, uFry uthi, umntwana wakho unokwabelana ngomzabalazo wakhe ne-JIA, afumane inkxaso, kwaye afunde iindlela eziluncedo zokuhlangabezana nobomi.Khumbula, unyango alulonyango nje lonyango oluyingozi kakhulu lwengqondo—lunceda abantwana abaninzi, nokuba luthintelo."Uninzi lwezigulane zethu ziya kuzuza ngokuthetha ngesigulo sazo nomntu oqeqeshelwe ukunceda abantwana abaneemeko ezingapheliyo," watsho uGqr.
Uxilongo lwe-JIA lunokuliguqula ilizwe lomntwana wakho libe phantsi kwaye limenze azive elilolo, kodwa zininzi iindlela zokubonelela ngenkxaso yengqondo ukuze aqhubeke ekhula kwaye aphumelele ebomini.Ngokuqhelekileyo indibaniselwano yezicwangciso iyafuneka ukuze uxhase umntwana wakho, nokuba kunceda umntwana ukuba ahlale enxibelelana nabahlobo okanye izinto azithandayo, okanye adibane nogqirha.UGqr. Brown uyasikhumbuza: “Qaphela ukuba ukufuna uncedo ngeengxaki ezingokwengqondo kunokuba namandla, kungekhona ubuthathaka."Ukungenelela kwangethuba kunokuthintela iingxaki ezinzulu."
Ixesha lokuposa: May-06-2023